Shane Burcaw Height, Weight, Net Worth, Age, Birthday, Wiki


Shane Burcaw is an American differently abled author, blogger, motivational speaker, activist, entrepreneur and advocate.

Shane Burcaw – Height, Weight, Net Worth, Age, Birthday, Wiki

Hailing from America, Shane Burcaw is a legendary author, blogger, motivational speaker, social media activist, entrepreneur, and advocate. He is a young adult with a pleasant sense of humor and Spinal Muscular Atrophy. SMA is a genetic condition that makes the muscles weaker and causes problems with movement. But Shane didn’t let his different abilities make him feel insecure.

Rather, he has gained a lot of popularity by writing his blogs and books. Laughing at the nightmare (2014), Strangers Assume My Girlfriend is my nurse (2019), and Not so different: What you really want to Ask about Having a disability (2107) is one of his best writings.

He and his girlfriend are creators of “Squirmy and Grubs”, a YouTube channel that offers a behind-the-scenes look at their relationship. Shane also runs a non-profit organization whose aim is to provide medical equipment to people with muscular atrophy. The fun filled and optimistic outlook of his ability has earned him attention from popular digital media platforms like BuzzFeed and The Huffington Post.

Early Life


Burcaw took birth in Bethlehem, a city along the Lehigh River in eastern Pennsylvania, In the United States, on 28 May 1992. He was brought up by his parents along with his siblings in Bethlehem. By birth, he was diagnosed with muscular atrophy. He has been in a wheelchair since the age of two.

A van was the only source for his parents for getting him to school, to the play area, to adaptive baseball practice and to therapy in his wheelchair. Shane did his early schooling in a local high school in his hometown.

Then, he went to Moravian college for a bachelor’s in the English language. Moravian University is a private liberal arts university in Bethlehem, Pennsylvania. Shane’s father, Jon Burcaw is a musician and her mother Susan Varga Burcaw is a housewife. Shane has only a younger brother named Andrew Burcaw.

Blogs and Books

During high school, he developed a passion for writing books and blogs. Since his childhood, he had to rely on anyone for everything and faced a lot of tough times in his life. But his influential mind was highly determined to leave a mark of his footprint on this planet before he passed away.

In 2024, Shane started writing his first blog describing his life and his struggle due to spinal disorder in a pleasantly humorous way. After years of writing, he finally launched this blog in 2014 entitled “Laughing at my nightmare”. This blog turned out to be a big hit and got top ranking on many websites.

After this achievement, Shane got more confidence to write more books. On June 1, 2018, he launched another fiction, “Not So Different: What You Really Want To Ask About Having a Disability”. This book served as a good introduction for students to people with disabilities.

With his signature wit and hilarious voice, On 28th April 2019, Shane came back to a publication entitled “Strangers Assume My Girlfriend is My Nurse”. The essay is a collection about how one can live a full life in a body that many people consider a tragedy.

In his book, Shane confronts uncomfortable situations and presumptions with humor and grace. He shares experiences about first meetings where people stroked him on the head instead of shaking his hand and tales of strangers thinking his fiancée was a nurse because of his able body. All these articles appear to be about wheelchair users with a degenerative disease going about their daily lives, but they are really about family, love, and growing up.

Youtube and Instagram Career


Apart from being a blogger and writer, Shane created a Youtube channel along with his wife Hannah Alyward on 19 June 2018. Since now, the husband-wife duo has gathered about 945K subscribers on their Youtube channel entitled “Squirmy and Grubs”. They both named their YouTube channel after their respective nicknames. A funny fact is Shane calls Hannah Squirmy because she squirms a lot while sleeping. Similarly, Hannah nicknamed him Grubs because of his “sweaty-hand problem.”

They uploaded their debut video captioned “My life expectancy has changed” on July 31, 2018. Until now (as of 2024), this video has been watched by 4,526,036 people with 70K likes. After this great hit, Squirmy and Grubs have uploaded a lot of videos and daily vlogs related to lifestyle, travelings, Q&As, adventures, and many other short series. Currently, they have over 100 million views on their YouTube videos.

Besides this, Shane is highly active on his Instagram feed with the username @shaneburcaw. Until now, he has done 1573 posts while gathering a 546K audience which is a big number. Here is the source of his social media accounts:



Shane’s Charity Organization


Above all, Shane Burcaw is the President of his own non-profit organization called “Laughing At My Nightmare, Inc”.Together with his cousin Sarah and the other employees at Laughing At My Nightmare, Inc. Shane helps other families who are impacted by muscular dystrophy and helps them in supplying assistive technology and providing free adaptive equipment to people living with muscular dystrophy while raising funds that go towards research—and making people laugh.

The motto of this organization says, “Our world is far from accessible. We believe that disabled people deserve equitable resources, and that being comfortable and functional should not be a privilege. We’re working”. To know further about their work you can visit their website:

Height and Weight

In a video on his youtube channel, Burcaw said that he is 4 feet and 7 inches or 1.39 m tall and weighs approximately 27 kg or 60 lbs. Shane has an atrophied body with a normal size head. In contrast to his body, he has a huge smile on his face.

Check out the following link:

Net Worth

Shane’s main source of income is the books he has published so far and his Youtube channel. According to estimated stats for 2024, his net worth is $1 million.

Age and Birthday

He was born on May 28, 1992, in Pennsylvania, the United States. He loves to celebrate his big day with his parents, siblings and wife. As of 2024, Shane is currently 29 years old.


  • Currently, he resides in Minneapolis, Minnesota.
  • Until now, he has published 3 books.
  • He owned a Youtube channel named “Squirmy and Grubs” with 954K subscribers.
  • He runs a non-profit organization “Laughing at My Nightmare”
  • He has been featured on popular digital media platforms like BuzzFeed and The Huffington Post.
  • He has been nominated for various awards including the Association of Illinois School Library Educators, Monarch awards, and Bluestem awards.
  • In 2013, his book “ “Laughing at My Nightmare” won Mid-Atlantic Emmy Awards in Philadelphia.


How many books have been published by Shane Burcaw until now?

He is the author of three books named Laughing at the nightmare (2014), Strangers Assume My Girlfriend is my nurse (2019), and Not so different: What you really want to Ask about Having a disability (2107).

What is the name of Shane’s charity organization?

Shane Burcaw is the President of his own non-profit organization, “Laughing At My Nightmare, Inc”.

How many subscribers does his Youtube channel have?

As of 2024, “Squirmy and Grubs” has 945K subscribers.


To conclude all, with acerbic wit and a hilarious voice, Shane Burcaw has faced many challenges as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a “you-only-live-once” perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life-threatening disease. I hope you will like this biography and share it with your friends.